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[verwijderd] 26 november 2015 10:19

maar order boek is onrustig wie weet wie weet!?

Cor S 26 november 2015 10:19

Al ruim 1 miljoen aandelen verhandeld - kom maar op met die stijging!

[verwijderd] 26 november 2015 10:50

quote:
mr.Franz schreef op 26 november 2015 10:16:
Wat een volume zeg, eindelijk lijken de grote partijen weer terug in te stappen.

1,5 miljoen aandelen als volume is ongeveer 0,4% van het geplaatst aandelenkapitaal van Pharming. Niet bepaald veel.

shjp 26 november 2015 11:07

ik hoop dat dit de omkeer is van de koers. hopelijk gaat hij verder omhoog de komende weken

De Zwarte kat 26 november 2015 11:36

We staan aan de vooravond van een koers explosie.

[verwijderd] 26 november 2015 11:37

quote:
A & A schreef op 26 november 2015 11:36:
We staan aan de vooravond van een koers explosie.

Eerst nog zien, roepen ze al jaren.

[verwijderd] 26 november 2015 12:48

Mooie stijging Pharmers.Maar niet zeuren als ie straks weer daalt...

Het is nog een lange weg te gaan tot de 40 centen van laatst.

De Zwarte kat 26 november 2015 12:56

hoezo 40 cent je zit tocht op draadje van een euro

[verwijderd] 26 november 2015 13:03

quote:
A & A schreef op 26 november 2015 12:56:
hoezo 40 cent je zit tocht op draadje van een euro

Zit je op de tocht?

[verwijderd] 26 november 2015 13:27

Copy van Hoezeerika met dank aan RRR.

haei.org/wp-content/uploads/2015/11/H...

[verwijderd] 26 november 2015 13:44

Hopelijk gaat er snel een pb komen dat ze subcutaan gebruik van Ruconest willen testen en een pil ontwikkelen zou helemaal mooi zijn.
In 50-50% kosten delen met Valeant.

[verwijderd] 26 november 2015 14:05

quote:
mr.Franz schreef op 26 november 2015 10:16:
Wat een volume zeg, eindelijk lijken de grote partijen weer terug in te stappen.

Volume is pas 2,2 m
Dat is peanuts op dik 450 m

[verwijderd] 26 november 2015 14:07

quote:
$euri schreef op 26 november 2015 14:05:
[...]

Volume is pas 2,2 m
Dat is peanuts op dik 450 m

ja wordt pas interessant als er orders van 1MIO/STUK worden ingelegd. die gaan er nog wel aankomen in de nabije toekomst.

[verwijderd] 26 november 2015 14:21

toch al een paar dagen wat belang stelling voor Pharming volumes nemen weer toe.

G20 Xdrive 26 november 2015 14:48

Het distributie contract wat PH heeft met het Colombiaanse Cytotech
voor Colombia & Venezuela verwacht ik aanzienlijke verkopen Ruconest daar er veel patiënten met HAE zijn gediagnostiseerd.
Het laatste Q4 zou wel eens zeer positief kunnen zijn.

CW1884 26 november 2015 15:05

Macedonia www.haemacedonia.mk

Access to medication
The first access to HAE medication happened in October
2015 but with no clear regulation about how patients
access it; named patient or needs basis. There are only
two hospitals in Macedonia that treat HAE, one for
children and one for adults. Ruconest and Berinert are
available, with Berinert mostly being for children. The
two hospitals are in Skopje, so patients have to travel
there for treatment. There is currently a clinical trial for
Ruconest and this helps with access at the moment.

Working together I
The countries near Macedonia have similar difficulties
in not having access to medicines. HAE Macedonia has
applied for a grant to have a regional meeting with
patients as there is a physician in each of the countries,
aware of patients and wanting to do something. In
Albania and Slovenia as well as in Serbia, Montenegro,
Croatia, and Kosovo there is great interest in doing a
patient meeting.

Working together II
HAE Macedonia is working with the National Alliance of
Rare Diseases to build its reputation and seek access to
medications. Most patients can only access therapy via
clinical trial, private donations or individual fundraising.

Patient registry
The hospitals and health regulatory body are positive
towards a patient registry, but there will be challenges
around how to collect substantial and accurate data.
HAE Macedonia hope to build a list to give to the
Minister of Health.

Macedonia www.haemacedonia.mk

Access to medication
The first access to HAE medication happened in October
2015 but with no clear regulation about how patients
access it; named patient or needs basis. There are only
two hospitals in Macedonia that treat HAE, one for
children and one for adults. Ruconest and Berinert are
available, with Berinert mostly being for children. The
two hospitals are in Skopje, so patients have to travel
there for treatment. There is currently a clinical trial for
Ruconest and this helps with access at the moment.

Working together I
The countries near Macedonia have similar difficulties
in not having access to medicines. HAE Macedonia has
applied for a grant to have a regional meeting with
patients as there is a physician in each of the countries,
aware of patients and wanting to do something. In
Albania and Slovenia as well as in Serbia, Montenegro,
Croatia, and Kosovo there is great interest in doing a
patient meeting.

Working together II
HAE Macedonia is working with the National Alliance of
Rare Diseases to build its reputation and seek access to
medications. Most patients can only access therapy via
clinical trial, private donations or individual fundraising.

Patient registry
The hospitals and health regulatory body are positive
towards a patient registry, but there will be challenges
around how to collect substantial and accurate data.
HAE Macedonia hope to build a list to give to the
Minister of Health.

CW1884 26 november 2015 15:07

Colombia www.facebook.com/pages/
Asociación-Colombiana-de-Angioedema-
Hereditario/119669588091359

One more South American country has been added to
the HAEi world map as Colombia has joined the family.
The HAE contact in Colombia is Jackeline Sus Moreno
who can be contacted at:
jacksus2@hotmail.com.
If you want to take a closer look at the HAE organization
in Colombia, please visit the national Facebook group at
www.facebook.com/pages/Asociació...
Angioedema-Hereditario/119669588091359.

CW1884 26 november 2015 15:12

From Milos Jesenak (Center for HAE in Martin, Slovakia
? www.unm.sk) and Katarina Hrubiskova (Center for
HAE in Bratislava, Slovakia) HAEi has received this
information:
Slovakia is a country in eastern central Europe with a
population of over 5 million people. The exact data about
the prevalence of HAE are missing, however, effective
therapies are available (human plasma derived C1-
INH concentrate, recombinant rabbit C1-INH, icatibant).
According to the general prevalence, there should be at
least 100-300 patients with HAE in Slovakia. Recently,
the national study about the number of HAE patients was
performed through the questionnaire-based survey in
Out-patient clinics for allergy and clinical immunology.
Based on the recieved questionnaires, there are all
together 87 living patients with HAE (aged 35.93 ys.;
43% males) from 39 families. 15 patients already have
died due to suffocation. The most prevalent form was
HAE type I (87%). The diagnostic delay between the first
symptoms and diagnosis estimation was 8.60 ys. In the
majority of the patients (68%) a combination of various
clinical symptoms (skin, gastrointestinal, laryngeal,
genital) was observed. However, 17% patients suffered
from isolated skin symptoms, 6% from gastrointestinal
and 3% from laryngeal angioedemas. Five patients are
still asymptomatic. Regarding the prophylaxis, 42% were
without prophylactic treatment, 47% took attenuated
androgens, 8% tranexamic acid, and 3% either pd-C1-
INH or rh-C1-INH. Acute attacks were treated in 30%
with danazol, in 26% with icatibant, in 22% with pd-
C1-INH and in 22% with rh-C1-INH. The survey is still
ongoing.
The creation of a national HAE registry as well as a
Slovak HAE patients’ organisation is planned.

CW1884 26 november 2015 15:14

Spain www.angioedema-aedaf.org

Website
The website of HAE Spain is currently being updated
and it is expected to be the first one hosted under the
HAEi umbrella.

Medication
Berinert, Cinryze, and Firazyr are available in Spain,
while there is no price agreement for Ruconest.
Stanozolol (attenuated androgen) is no longer being
marketed in Spain.

[verwijderd] 26 november 2015 15:14

quote:
leon 55 schreef op 26 november 2015 14:48:
Het distributie contract wat PH heeft met het Colombiaanse Cytotech
voor Colombia & Venezuela verwacht ik aanzienlijke verkopen Ruconest daar er veel patiënten met HAE zijn gediagnostiseerd.
Het laatste Q4 zou wel eens zeer positief kunnen zijn.

Aha, vandaar die stortvloed aan aanvragen voor leningen uit die landen. Als iemand nog wil sponsoren hoor ik het graag.

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Detail

Vertraagd	3 mrt 2025 11:32
Koers	0,869
Verschil	-0,001 (-0,17%)
Hoog	0,873
Laag	0,860
Volume	1.231.666
Volume gemiddeld	5.554.916
Volume gisteren	4.024.492

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