beeldscherm schreef op 9 januari 2018 09:55:
Loukisha's Story
19 minuten ·
Hi everyone and welcome back for another #Ruconest Monday Infusion. Believe it or not we actually had a cold rain day, Along with the cold and rain came achy joints and slightly swollen eyelids, top lip and one side of my face. Whether it is extremely hot and dry or very cold and rainy my body often responses with swelling. Weather is one of many triggers for HAE swells, so I have to be careful and prepared at all times. I’m grateful it is infusion day. After getting the #Ruconest in my system the mild swelling resolved and I didn’t need to use #Firazyr (subcutaneous injection medication for acute HAE attacks). This is a positive change, in the past weather like this would keep my family in a heightened worried state, because I would be on the verge of swelling all day. For the first time in years everyone was able to relax and enjoy listening to the sound of the rain. Not having to worry about swelling, I had to contend with limping around like Dr. Frankenstein’s assistant. Since it was cold and wet outside I stayed in bed with hot tea, heating blanket, and either one or both of my kids bouncing in and out of my room. It was a good way to distract myself from my overall discomfort and entertained with hilarious stories from my kids.
With the change of weather do you have increased chances of an HAE swell? Or perhaps barometric pressure fluctuations help usher in a swell? If these things have the potential of encouraging an HAE what do you do to prepare? I would really like to hear ways to deal with swells or the potential of swells. Please share your comments or questions below, because everyone has a story to tell, so don’t be afraid to tell yours.
After getting the #Ruconest in my system the mild swelling resolved and I didn’t need to use #Firazyr (subcutaneous injection medication for acute HAE attacks).
zullen de healthcare providers ook leuk vinden $$$$