hier ze kan/durft weer gaan zwemmen dankzij Ruconest,
Loukisha's Story
5 uur ·
Hello Dear Ones, and welcome back to Loukisha Story. I hope you’re staying warm. I know you look at California’s weather not understand why we are caterwauling about our weather. Just give us a moment to complain since anything under 60 degrees is the start of a new ice age. Personally the lower temperatures gave me pause, if I wanted to venture outside. The Hubby and kids have been known to consult my hip and knee for temperature predictions, since they known jokenly as weather oracles. In the past lack of pain control and fluctuation in prophylactic HAE infusion medication often kept me home. In my new found freedom due to the combined effort of Dr. Ferrante and Dr. Riedl I’m participating more often physically in my life. With this new development I’ve been testing the waters and pleasantly surprised my body and mind retained the ability to interact with the outside world. Now I’m acquiring a new skill set of learning the limits of my body. In no way am I eluding to being healed, for I still have many moments when my body assertively rebels. Amazingly my physical boundaries have exceeded their previous borders. The struggle in balancing not being aggressively held captive by HAE, and now it walking on a leash is a challenging situation shift. My Ohana and I became accustomed to being in a heightened state of impending doom. Now, we must adjust to relaxing and exhaling instead of holding our breath, because an airway swell is lurking nearby. The physical calming doesn’t mean I’ll never have another HAE swell again. I must be vigilant in monitoring my body for it is not IF I swell, but a matter of When. In spite of the tumultuous past, it is okay to make plans without consulting HAE. I still have a potentially life taking disorder and chronic pain can still knock me on my ass. Trust me HAE and chronic pain never had trouble expressing themselves, so I’ll continue to infuse bi- weekly and take my other daily medications. However now I’m going to boldly make plans honoring my life in a completely new way, while I enjoy a new depth of peace. Thank you for following my page. Remember everyone has a story to tell, don’t be afraid to tell yours